For the first time since Maddison's diagnosis in 2006, I feel comfortable....even READY to send her back to school this year. Maddison is so much older and responsible now, and we are very fortunate she has never had trouble sensing her lows like alot of people/children with Diabetes. Of course, my biggest comfort by far is our school Nurse who has cared for Maddison since day 1. I could never feel this level of comfort without her!
Then came a reminder. For just seconds it all flashed through my mind.
Today was time to gather the supplies Maddison will need in the Nurses office for the school year. Supplies Maddison needs to manage her Diabetes. Supplies that keep her safe, healthy.....ALIVE. Supplies that most parents don't have to gather for a new school year. Diabetes flashed through my mind, and then entered a twinge of anger and sadness...fear.....becuase in our life, we DO have to think about these things. Always. The emotions of Diabetes will slap you in the face when you least expect it. Even when you were just trying to get ready for a new school year.
Most days we forget the seriousness of this disease. We forget that our child is kept alive by a precious hormone that their body no longer makes. We forget that the insulin pump attached could fill with air bubbles blocking insulin from entering their body. Without insulin, blood sugar will rise. Without insulin, my child will die. Packing up school supplies.....a reminder.
Parents that have children with Diabetes are forced to set aside our fears. Day after day after day. We must move on past yesterdays scary lows and manage for today. We fight the highs. We track patterns. Every day is different. We can only do our best. Stay diligent. This all brings a bit of fear to life. We are only human. We are not a pancreas. Reminders. As parents we must stop the worry in our hearts for our children's future. We hide our worries of sudden death, kidney failure, blindness. We must send our "D" kids off into the world with faith that they will be safe from a medical emergency at any moment. Its hard. Back to school is TOUGH for all parents that have kids with special needs! Today, I was reminded.
So what does a T1 kid need at school?
Extra meter batteries
Control solution (to make sure the meter is working properly)
extra pump batteries
Syringes for pump failures
Instruction manual for Insulin Pump
DETAILED 504 TREATMENT PLAN IN PLACE! Revised each year!
Endless juice boxes
Glucose tablets for lows
Snacks for lows
GLUCAGON INJECTION FOR Low EMERGENCIES!! (seizures, loss of consciousness etc)
More snacks for lows
Low carb/no carb snacks for highs
Endless water bottles for highs
Special no carb drink replacement for class parties
More glucose tabs
Stress. Excitement. New sleep patterns. New waking times. New routines. It all changes Diabetes management. Growth spurts. Illness. Weather. Sitting at a desk all day. Running around the playground. Here comes the new school year. As much as I find comfort in my heart for this new school year, the reminders are always there.
Moving my blog again
3 years ago