Thursday, February 17, 2011

She Doesn't Even Play

Maddison doesn't even play Volleyball, but Hannah's practice nights affect her Diabetes.....Say what?! Its true! EVERYTHING can and WILL affect Diabetes!!!

Maddison hasn't had "midnight lows" for many, many months. A new record, actually! Maddie may come in too high around midnight sometimes, but we have avoided
midnightISH lows for a long, long time. (I'll take late night highs over late night lows ANY day thank you!) So whats the deal lately with a midnightISH low here and there?

A D Mom must question....hmmmm. No active insulin going to bed. Thats not it. Maddison went to bed in range and dropped over 80pts? A basal DECREASE is needed? Thats weird. You might see an INCREASE when Maddie's insulin needs change at night, but decreasing to an amount that has NEVER been so low? Doesnt make sense. Did Maddison zoom around today? Nope. Ride her bike? Swim? Run miles? NOPE. Nothing out of the ordinary. Hmmm....

Volleyball practice. HANNAH's Volleyball practice affects MADDISON's Diabetes!! Yep. Sure does. Hannah has practice Tuesdays and Thursdays until 9:30pm. Which means we dont get home until 10pm. Which means Maddison doesn't fall sound asleep until AT LEAST 10:30pm, which in my D Mom mind says "HOLY HELL now basals need to be changed for practice nights!!"

If Maddie isnt asleep "on time" by 9:30 or 10 each night, her basal rates overnight will be all off track. Who knew a child's body has such precise insulin needs while they sleep? Its like clock work. Maddie falls asleep. Almost instantly her insulin needs INCREASE. Because growth hormones kick in and cause insulin resistance right? Or so they say....

730pm. Maddison's pump is set to begin dosing DOUBLE the amount of insulin than she needs during the day. Double doses. Because at night children grow and need the extra insulin to avoid highs. (this child anyway) The double dose is set with the plan that Maddison is sleeping "on time" and everything **usually** works great....

If Maddison isnt sleeping "On time" she is getting double insulin doses that arent needed yet! Because she isnt sleeping yet!! And Maddison will go LOW!!

So, Ive tried a temp basal reduction on late nights. UM. Nope. Didnt work. I tried to put Maddison to bed higher at 180. NOPE. She was 64 within 2 hours. One night I put her to bed at 210 without correcting. NOPE. She was 56 within 2 hours!! HOLY HELL!! Extra snack with no insulin before bed = 380 by midnight. UGH. Why change Maddie's basal rate if its only two nights a week she goes low from staying up later? How many more "tries" does it take to get it right without risking lows in the night? SHEESH!

It was starting to work out...UNTIL.... all of a sudden some nights I catch Maddison up tossing and turning until at least 11pm!! Any random day of the week! So, then I have to stay up and watch her sugars like a hawk for awhile, all because she wasnt able to fall asleep "on time." I find myself nagging...

"Go to sleep Maddison!"

"Close your eyes and TRY to sleep!"

"You got 5 minutes to fall asleep!!"

Its ridiculous.

From the outside we may look completely normal. But THIS? THIS is not normal at all. And I'm tired. My mind is fried. What do we try now? Sleeping on time = avoiding dangerous lows in the night. Damn basal dosing. If only Diabetes was as easy as the world sees it.....

5 comments:

Reyna said...

UGH...and I totally know what you are talking about. Joe's basal rate doubles at 7:30pm too! LOL. Hang in there...and people wonder why we are all CrAzY!!! xoxo

Nikki of Our Diabetic Warrior said...

Boy do I feel blessed to have you guys! I know I have all this ahead of me and it's a relief to know that I'll have help. You all amaze me!!!! Hang in there...you're doing an AWESOME job!

Lora said...

Pain in the ass isn't it!?!

Meri said...

Why does it have to be everything? Why can't just some things affect blood sugars?

I'm calling a "No Fair" on this one!

Joanne said...

Oh my damn I'm tired just reading that. Does it ever end? Ever?